Roscoe had a comfortable, stable night. He has been at 50-55% oxygen consistently and they haven't had any major episodes. Last night they started weaning the nitric oxide from 15ppm to 10ppm. Roscoe had an immediate negative reaction, with his oxygenation dropping very low despite being supplied 100% oxygen. The nurse said that typically, kids don't have that kind of reaction to nitric oxide weaning until it gets down below 5ppm, but as usual Roscoe isn't a typical kid. They put the levels back up to 15ppm and he returned to normal. This morning his heart rate was very relaxed in the mid-90's, right where it should be during a deep sleep. The nurse commented on how cute he was, which I'm sure is part of the standard reassure-the-parents-that-their-kid-is-special-and-not-like-everyone-else protocol. She said "he is going to break a lot of hearts when he is older".
Over the next few days, Roscoe will have some medical procedures done that require putting things into his body that shouldn't be there. Through the chaos and near fatal outcome last week, he received several needle marks. By "several" I mean that I counted 16 needle holes in his body, but I'm not sure I got all of them. When we arrived at UCSF I took some pictures to show the more painful side of having a son in the hospital:
Head: Two former IV sites in the top of his head
Head: Several attempts at a PICC line through a large vein
Left arm: A few marks from blood tests
Right arm: Current IV and other marks from blood tests
Left leg: Former IV site and marks from blood tests