Over the past several months, Alisha has developed a friendship with one NICU mom in particular named Lori. They met because Lori's baby (Phin) was also a long-term NICU baby and had struggled with some of the same issues that Roscoe struggled with. Lori and Alisha will often go to lunch and swap stories about recent baby developments or NICU follies. With this blog post, we'd like to introduce you to Phin:
Phin was born in November 2013 with a due date only a few days removed from Roscoe's. Both Phin and Roscoe struggle with breathing issues and feeding issues, as you may have presumed from the nasal cannula and feeding tube in the picture above. Like Roscoe, Phin has also had surgery postponed and delayed, causing Lori and Jeff (Phin's parents) much stress. To add to the difficulties, both Lori and Jeff work full-time and live a few hours away, compared to Alisha and I who live only 15 minutes from the hospital.
Alisha and I wanted to ask all of our loving blog readers to pray for Phin tomorrow. Surgery is scheduled for Monday to remove a growing mass from Phin's upper spine, close to the brain stem. This growing mass (called a syrinx) has confused the doctors because they can't quite figure out what it is or why it is growing. Luckily the syrinx isn't attached to Phin's brain stem. The doctors are so perplexed by it that they sent out information for peer review and no other doctors could identify it either. Two high-level neurosurgeons will be in the operating room with Phin on Monday so that they can make collaborative decisions based on what they find. The neurosurgeons said that they won't know until they see the syrinx directly whether it can be removed cleanly, so the surgery will take anywhere from 30 minutes to half a day. Prior to the neurosurgery, Phin will get an fMRI (at 7am) and a broviac catheter (at 8am).
Some of the risks that Phin will face in this surgery are a risk of paralysis or the risk that the syrinx is too dangerous to remove. This obviously causes a great deal of stress for Phin's parents, being unable to control or even know the outcome. We'd like you to pray earnestly that Phin's surgery goes smoothly and successfully. Please ask God to give the surgeons skill and wisdom as they make decisions and take action in the operating room, so that Phin can pass safely through this tribulation and continue growing and developing to be the joyful child that God created.
"Be joyful in hope,
patient in affliction,
faithful in prayer."
- Romans 12:12