Roscoe's roller-coaster continues today. After starting out okay and progressing down to 48% on his oxygen support, his heart rate and breathing rate have gone up dramatically. The doctors also discovered that he now has pulmonary edema (fluid retention in the lungs) due to the nitric oxide he is receiving. The nitric oxide loosens the vessels in his lungs, but that puts more pressure on his pulmonary vein stenosis (which causes the fluid to back up in the lungs). They plan to back off the nitric oxide as quickly as they can (safely) and give him a diuretic to get rid of fluid.
On top of these issues there appears to be a problem with the trach tube sizing (again) and they're wanting to replace it and do another x-ray. I will be heading back to the hospital today so that we can make sure Roscoe doesn't get too much done to him in a short amount of time. We have discovered that parents need to defend the well-being of their child in times where hospital departments fail to properly communicate with eachother.
It looks like UCSF is also requesting that Roscoe return earlier than originally planned, so that they can do additional treatments for his pulmonary hypertension and possibly put in a stent for his pulmonary vein stenosis. I'll be at the hospital most likely all day today, so another update won't come out until tonight when we get home. We'll have alot more to update with tonight, based upon the findings and events from today.